Where Do We Belong?

Where do we belong?

I find myself asking this question a lot.

I find myself sitting in my thoughts about where my kids and their autism will fit into this world.

A autism diagnosis doesn’t guarantee someone will get what they need or deserve. It doesn’t guarantee them acceptance, understanding, or inclusion.

Since the kids diagnosis I have spent so much time fighting for every big and little thing that they need or deserve.

Since I spend so much of my time fighting I start to feel like we don’t belong or if I’m being completely honest, like we arnt wanted.

Even some of the closest people to us don’t fully understand our life and the impact autism has on us daily.

What I do know is we belong together.

I will always fight for Harper and Dallas’s needs and wants.

I will fight for their safety, inclusion and acceptance.

I will always be by their side. Understanding, loving, supporting, and caring for them every step of the way.

They belong.

This post was written by Shelby Shivener from Autism On The Farm.

#autismonthefarm #autism #autismmom #supporters

Comments

Speech Device.

Speech Device. A huge misconception about speech devices is that they discourage children from using their verbal language. This could not be further from the truth. Keeping a communication tool away from a non speaking child is not a way to get them to speak. Harper and Dallas both started with PECS. A picture exchange system to express their wants and needs! As a mom of 2 non speaking children getting them to use PECS as a means of communication was a life changer for us. Now Harper has her speech device. Dallas’s is in process and will hopefully be here soon. Since getting Harpers device that has verbal output when she presses a button to make a request. She is able to answer so many question and let us know what her wants and needs are. She is also repeating the words after she hears her device say them. Harper can answer me with her device when is ask, What’s your name? How old are you? When’s your birthday? What do ...

Harpers Beginning Part 1

When we received Harpers diagnosis of Autism my way to deal with my grief was to dive into the world of autism. I wanted to read and learn everything I possibly could. When I would find a new blog, podcast, instagram or facebook page I would scroll all the way to the beginning. I wanted to see if someone had a child like mine. Trying to find any community I could. So my blog is going to start at the beginning. This is Harper’s story. With my oldest I had preeclampsia and high blood pressure and I delivered Savannah at 35 weeks. With Harper I had a plan and was more informed on what to do and not to do to try to prevent having those same issues again. But at 13 weeks pregnant with Harper on September 24th 2017 I was admitted to the hospital and immediately rushed into surgery because my appendix has ruptured. I remember everything from that time. I knew pregnant women shouldn’t have surgery, anesthesia, medications, all of the things that I was about to have done to me. My O...

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I remember before diagnosis. There was a stretch of time where I was just a tool for Harper and Dallas. They only needed me to get them food, change them, open items and that’s it. There was no verbal communication and not much non verbal communication. Communication consisted of crying. Dallas when he would want something he would just cry. There was nothing that led to the crying. He was either fine or crying. If he wanted a drink to let me know he would cry. Harper would just drag me around. She would grab my arm and pull me to the fridge and it was a guessing game of what she would want. If I grabbed the wrong thing she would cry. If I grabbed the right thing she was silent. For both of them there was no pointing or reaching. This time of our life was hard! But this time of my life taught me so much! I learned so much about my kids. I compare it to a newborn. When you have a newborn you are in tune with them. I remember I learned diff...

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